Shane Burcaw

Shane Burcaw is a twenty-three-year-old with spinal muscular atrophy. He lives in Bethlehem, PA with his family, and runs a blog and eponymous nonprofit organization dedicated to raising money for muscular dystrophy research.

Matt Carr is an award-winning visual storyteller with a background in photojournalism and a penchant for delivering honest, believable, and beautifully lit scenes. His photography has been published in The New York Times, Entertainment Weekly, and Rolling Stone among other publications, and he has been recognized by American Photo, Hasselblad Masters, PDN, IPA, and Communication Arts. After 10 years working in London and Prague, Matt now lives in Brooklyn with his wife and their spirited 4-year-old daughter.